Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Mar 31, 2022
Date Accepted: Aug 3, 2022
Date Submitted to PubMed: Aug 4, 2022

The final, peer-reviewed published version of this preprint can be found here:

Co-Development of a Web Application (COVID-19 Social Site) for Long-Term Care Workers (“Something for Us”): User-Centered Design and Participatory Research Study

Saunders C, Sierpe A, Stevens G, Elwyn G, Cantrell M, Engel J, Gonzalez M, Hayward M, Huebner J, Johnson L, Jimenez A, Little R, McKenna C, Onteeru M, Oo Khine M, Pogue J, Salinas Vargas JL, Schmidt P, Thomeer R, CONFIDENT Study Long-Term Care Partners , Durand MA

Co-Development of a Web Application (COVID-19 Social Site) for Long-Term Care Workers (“Something for Us”): User-Centered Design and Participatory Research Study

J Med Internet Res 2022;24(9):e38359

DOI: 10.2196/38359

PMID: 35926074

PMCID: 9506501

"Something for us": Co-development of the COVID-19 Social Site, a web app for long-term care workers

  • Catherine Saunders; 
  • Ailyn Sierpe; 
  • Gabrielle Stevens; 
  • Glyn Elwyn; 
  • Matthew Cantrell; 
  • Jaclyn Engel; 
  • Melissa Gonzalez; 
  • Martha Hayward; 
  • Joellen Huebner; 
  • Lisa Johnson; 
  • Alejandro Jimenez; 
  • Ruth Little; 
  • Corinne McKenna; 
  • Manu Onteeru; 
  • May Oo Khine; 
  • Jacqueline Pogue; 
  • José Luis Salinas Vargas; 
  • Peter Schmidt; 
  • Rachael Thomeer; 
  • CONFIDENT Study Long-Term Care Partners; 
  • Marie-Anne Durand

ABSTRACT

Background:

Improving confidence in and uptake of the COVID-19 vaccines and boosters among long-term care workers (LTCWs) is a crucial public health goal, given their role in the care of the elderly and people at risk. While difficult to reach with workplace communication interventions, most LTCWs regularly use social media and smartphones. Various social media interventions have improved attitudes and uptake for other vaccines and hold promise for the LTCW population.

Objective:

We aimed to develop a curated social web app (interactive website) to increase COVID-19 vaccine confidence (three-arm randomized trial underway).

Methods:

Following user-centric design and participatory research approaches, we undertook three steps: content identification (1), platform development (2), and community building (3). An LTCW and stakeholder advisory group provided iterative input. For content identification, we identified topics of concern about COVID-19 vaccines via desktop research (published literature, public opinion polls and social media monitoring), refined via interviews and a poll with LTCWs. We also conducted a national online panel survey. We curated and fact-checked posts from popular social media platforms addressing the identified concerns. During platform development, we solicited preferences for design and functionality via interviews and user experience (UX) testing with LTCWs. We also identified best practices for online community building (3), like comment moderation.

Results:

In the interviews (n=9), we found three themes: LTCWs 1) are proud of their work but feel undervalued; 2) have varying levels of trust in COVID-19 related information, and 3) would welcome a curated COVID-19 resource that is easy to understand and use. Our national online panel survey (n=592) confirmed that participants are interested in information about COVID-19 in general, vaccine benefits, vaccine risks, and vaccine development. Content identification resulted in 434 posts addressing these topic areas, with 209 uploaded to the final web app. Our LTCW poll (n=8) revealed preferences for personal stories and video content. The platform we developed is an accessible WordPress-based social media web app, refined through formal (n=3) and informal UX testing. Users can sort posts by topic or subtopic and react to or comment on them. To build an online community, we recruited three LTCW ‘community ambassadors’ and instructed them to encourage discussion, acknowledge concerns and offer factual information on COVID-19 vaccines. We also set ‘community standards’ for the web app.

Conclusions:

An iterative, user-centric, participatory approach led to the launch of an accessible and usable social media web app with curated content for COVID-19 vaccines targeting LTCWs in the U.S. Through our trial, we will determine if this approach successfully improves vaccine confidence. If so, a similar social media resource could be used to develop curated social media interventions in other populations and for other public health goals. Clinical Trial: This effort is part of a broader clinical trial; ClinicalTrials.gov NCT05168800


 Citation

Please cite as:

Saunders C, Sierpe A, Stevens G, Elwyn G, Cantrell M, Engel J, Gonzalez M, Hayward M, Huebner J, Johnson L, Jimenez A, Little R, McKenna C, Onteeru M, Oo Khine M, Pogue J, Salinas Vargas JL, Schmidt P, Thomeer R, CONFIDENT Study Long-Term Care Partners , Durand MA

Co-Development of a Web Application (COVID-19 Social Site) for Long-Term Care Workers (“Something for Us”): User-Centered Design and Participatory Research Study

J Med Internet Res 2022;24(9):e38359

DOI: 10.2196/38359

PMID: 35926074

PMCID: 9506501

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.

Advertisement