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The COVID-19 Citizen Science Study: Protocol for a Longitudinal Digital Health Cohort Study
Alexis L Beatty;
Noah D Peyser;
Xochitl E Butcher;
Thomas W Carton;
Jeffrey E Olgin;
Mark J Pletcher;
Gregory M Marcus
ABSTRACT
Background:
The COVID-19 pandemic has catalyzed a global public response and innovation in clinical study methods.
Objective:
The COVID-19 Citizen Science (CCS) study was designed to generate knowledge about participant-reported symptoms, behaviors, and COVID-19 disease occurrence.
Methods:
CCS is a world-wide, longitudinal cohort study launched on March 26, 2020 on the Eureka Research Platform. This study illustrates important advances in digital clinical studies, including entirely digital study participation, targeted recruitment strategies, electronic consent, recurrent and time-updated assessments, integration with smartphone-based measurements, analytics for recruitment and engagement, connection with partner studies, novel engagement strategies such as participant-proposed questions, and feedback of real-time results to participants.
Results:
To date, the study has enrolled over 50,000 participants. Study enrollment and participation are ongoing.
Conclusions:
Continued innovation in digital clinical study methods represents the future of clinical research.
Citation
Please cite as:
Beatty AL, Peyser ND, Butcher XE, Carton TW, Olgin JE, Pletcher MJ, Marcus GM
The COVID-19 Citizen Science Study: Protocol for a Longitudinal Digital Health Cohort Study